Friday, November 20, 2009

Ma Perchè???



Sono amica di Lorenzo of Vlog Sordi su facebook e sono rimasta leggermente male quando ho visto questa foto con su scritto: No Cochlear Implant.
Però è anche vero che lui ha commentato: Sono Orgoglioso Come Sono e Come Vivo.

Poi ho letto i vari commenti che seguivano ed erano pieni di rabbia, come "Io odio IMPIANTO COCLEAR", e "Ma tutti i ragazzi audiolesi che ho conosciuto finora sono contrari all IC. e poi i genitori, purtroppo, spesso si lasciano condizionare dai medici nonostante i problemi di oggi.."

Mi sembra che si possa configurare un conflitto di base, come se i medici che consigliano l'impianto cocleare ai genitori di bimbi candidati lo facessero per dispetto o per interesse. Ho già condiviso questo dialogo (che non finisce mai) con la comunità dei sordi americana. Qui in Italia... stessa storia.

Mio figlio è sordo, ma sente.
Non utilizza la LIS ma parla.
Non ho problemi con la LIS, ho anche chiesto a Jordan se la voleva imparare. Ha detto di no.
Però, anche lui è sordo. Quando toglie quel processore, non sente nulla.

Lorenzo ha scritto questo commento:
Sì! giusto che bisogna rispettare la scelta, ma i dottori? Non so se hanno lasciato la possibilità di scegliere...

I dottori danno consigli e spiegano come funziona il loro reparto e come lavorano. Tanti dottori sconsigliano l'impianto cocleare. Per esempio, la mia audiologa non era daccordo con il mio desiderio di informarmi in riguardo all'impianto cocleare. HO SCELTO IO di fare le ricerche finchè non sono stata convinta delle mie scelte ed ho proseguito per la mia strada per il bene di mio figlio, lasciandola comunque nelle sue posizioni e convinzioni. Apprezzo la prima parte del commento: "bisogna rispettare la scelta" e dico che l'ultima decisione spetta ai genitori che conoscono meglio di chiunque altro propri figli."
I dottori sono potenti, ma non sono mica degli Dei.

E poi, leggendo ancora, ho trovato questi altri commenti:
"..sembra la grande difficoltà soprattutto lo sport e le certe cose... non può andare a giocare con altri.. , si dice non si può giocare causa in pericolo I.C"
"..pure ci vogliono autorizzata per volare in aereo"

Vedete! Questi commenti sono falsi e vorrei sapere come cavolo fa, informazione di questo genere, a circolare??? Perchè ovviamente non esiste abbastanza informazione al contrario.

1. I bambini ipoacusici che hanno l'impianto cocleare fanno sport: calcio, pallavolo, basketball, nuoto, baseball, ecc.
2. Jordan vola da quando aveva dieci mesi sia con le protesi che con l'ic- mai ho avuto bisogno di autorizzazione.

Un altra persona ha lasciato questo commento:
"Ognuno sceglie cosa vuole, ma L'INFORMAZIONE DEVE ESSERE CORRETTA!"
Sono daccordo.

 

46 comments:

Giovanni said...

Credo, e mi auguro, che sia una provocazione. Ma la capisco. Quando vedo i video di VLOG e leggo le risposte, mi rendo conto di quanto sia ampia la distanza tra le persone creata (anche) dalla sordità. E forse l'IC ha contribuito ad aumentatarla. Qualche settimana fa eravamo con nostra figlia, portatrice di IC, in un acquario e, reciprocamente, ci siamo accorti di essere spalla-spalla con una felice coppia di ragazzi sordi che comunicavano con la Lis. Sorrisi, tentativi di comunicare, come trovarsi all'estero senza sapere la lingua di quel paese. Brutta cosa l'ignoranza, la mia in questo caso!

Lidia said...

A me queste reazioni così forti (se ricordi anche io fui attaccata con una certa violenza verbale da questa persona in un post tra l'altro in cui gli facevo i complimenti ma solo perchè avevo detto di non conoscere bambini sordi) mi danno l'impressione di chi si senta accerchiato, di sentirsi il terreno franare sotto i piedi (l'IC di fatto ridurrà il numero dei segnanti). Come dice Giovanni è comprensibile seppur non condivisibile. Ammirevole il tuo tentativo di dialogo (dopo quell'attacco che ebbi così gratuito da parte mia ci ho rinunciato), spero di cuore possa essere accolto.

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